A Scottish charity for people with PMLD

The care is agreed on paper. We help make it happen.

Free information, tools and support for people with profound and multiple learning disabilities and the families who care for them. Started by a parent-carer.

PMLD: Profound and multiple learning disabilities. People with PMLD often have complex health needs, sensory impairments and no speech. They depend on others for everything, so when a system fails them, it fails the whole family.

Start here

Choose what you need today.

Understand PMLD

What it means, health, communication and your rights in Scotland.

Find support

Organisations that can help, and how to contact them.

What can we claim?

Benefits from birth, at 16 and for terminal illness, and help with a vehicle.

Health and hospital

Hospital stays, oxygen, ketogenic diet, growing up and palliative care.

No day placement?

Build your own week with PAs you choose: a step-by-step roadmap with an advert template.

Places to go and therapies

Changing Places toilets, day services, pooling budgets and therapy for cerebral palsy.

Find equipment

Hoists, posture and head support, walking aids, swimming and preparing food.

Get trained

Emergency epilepsy medication, first aid, swallowing and courses for PAs and families.

Write a letter

Template letters to ask for help, chase a promise, complain or get records.

Keep your details in one place

Save your details once and keep a record of every call and promise.

Did you know?

Things many families only find out years later.

What we do

Everything on this website is free.

Information for families

Clear explanations of PMLD, health, communication and the rights a person with PMLD has in Scotland.

What is PMLD · your rights

Finding support

A list of organisations that help, from family support to free legal advice.

Charities · law centres

Letters and records

Template letters and a private record of every call and promise, so families have the evidence they need.

My file · template letters

Activities

Recreational activities that improve quality of life for people with PMLD.

Coming soon

Relief of hardship

Help for people with PMLD facing hardship because of their disability, ill health or money worries.

Coming soon

Campaigns

Speaking up for people with PMLD, so services are designed around the people who use them.

Coming soon

Get in touch

"When the person is too ill to go out, who stays with them?" If nobody has answered that question for your family yet, we want to hear from you.

hello@judesjustice.org.uk

Based in Glasgow. Working across Scotland.